Introduction: Pediatric palliative care (PPC) deals with several issues of very high social impact, despite this, these are still poorly known among the population. These are an excellent tool for treating children and adolescents with life limiting conditions, life shortening conditions, and life treating, reducing the social pressure associated with these conditions. Aim: The purpose of this narrative review of the literature is to make health education with respect to PPCs, analyzing their functions, ethical principles, and the population to which they are aimed. It also aims to demonstrate how the activation of palliative pathways for pediatric patients improves the quality of life for them and their caregivers. Materials and Methods: Narrative review of the literature was performed by identifying different keywords through PICOM methodology. The target population is pediatric patients with life limiting conditions, life shortening conditions and life treating conditions aged 0-18 years. The search was carried out through search engines such as PubMed and Cochrane Library, smaller works such as national studies or clinical trials were also consulted. Results: Analysis of the selected articles showed that PPCs improve the quality of life for the child and his or her family while also reducing the cost to public spending. Despite this, there are some gaps that need to be filled especially from the organizational point of view. Conclusion: In the light of the results obtained and the articles included in the review, it is affirmed that the nurse has a fundamental role in the care of these patients and their families; In addition, home care associated with early access to these pathways have been shown to be elements that minimize the social pressure derived from these conditions.
Introduzione: Le cure palliative pediatriche (CPP) trattano diverse tematiche ad altissimo impatto sociale, nonostante ciò, queste sono ancora scarsamente conosciute tra la popolazione. Queste sono un ottimo strumento per trattare bambini ed adolescenti con life limiting conditions, life shortening conditions e life treatening, riducendo la pressione sociale associata a tali condizioni. Obiettivo: Lo scopo di questa revisione narrativa della letteratura è fare educazione sanitaria rispetto le CPP, analizzandone le funzioni, i principi etici e la popolazione alla quale sono rivolte. Si pone inoltre l’obbiettivo di dimostrare come l’attivazione di percorsi palliativi per pazienti pediatrici migliori la qualità di vita loro e dei suoi caregivers. Materiali e metodi: La revisione narrativa della letteratura è stata eseguita identificando le diverse parole chiavi attraverso la metodologia PICOM. La popolazione di riferimento sono i pazienti pediatrici con life limiting conditions, life shortening conditions e life treatening di età compresa tra i 0 e i 18 anni. La ricerca è stata effettuata attraverso motori di ricerca come PubMed e Cochrane Library, sono stati inoltre consultati lavori di minore valenza come studi nazionali o clinical trial. Risultati: Dall’analisi degli articoli selezionati è emerso che le CPP migliorano la qualità di vita del bambino e della sua famiglia riducendo anche il costo per la spesa pubblica. Nonostante ciò, ci sono alcune lacune da colmare soprattutto dal punto di vista organizzativo. Conclusione: Alla luce dei risultati ottenuti e degli articoli inclusi nella revisione, si afferma che l’infermiere ha un ruolo fondamentale nell’assistenza di questi pazienti e delle loro famiglie; Inoltre, l’assistenza domiciliare associata ad un accesso precoce a questi percorsi si sono dimostrati degli elementi che limitano al minimo la pressione sociale derivata da queste condizioni.
L'assistenza infermieristica nelle cure palliative pediatriche: una revisione narrativa della letteratura.
BIONDINI, LORENZO
2022/2023
Abstract
Introduction: Pediatric palliative care (PPC) deals with several issues of very high social impact, despite this, these are still poorly known among the population. These are an excellent tool for treating children and adolescents with life limiting conditions, life shortening conditions, and life treating, reducing the social pressure associated with these conditions. Aim: The purpose of this narrative review of the literature is to make health education with respect to PPCs, analyzing their functions, ethical principles, and the population to which they are aimed. It also aims to demonstrate how the activation of palliative pathways for pediatric patients improves the quality of life for them and their caregivers. Materials and Methods: Narrative review of the literature was performed by identifying different keywords through PICOM methodology. The target population is pediatric patients with life limiting conditions, life shortening conditions and life treating conditions aged 0-18 years. The search was carried out through search engines such as PubMed and Cochrane Library, smaller works such as national studies or clinical trials were also consulted. Results: Analysis of the selected articles showed that PPCs improve the quality of life for the child and his or her family while also reducing the cost to public spending. Despite this, there are some gaps that need to be filled especially from the organizational point of view. Conclusion: In the light of the results obtained and the articles included in the review, it is affirmed that the nurse has a fundamental role in the care of these patients and their families; In addition, home care associated with early access to these pathways have been shown to be elements that minimize the social pressure derived from these conditions.| File | Dimensione | Formato | |
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https://hdl.handle.net/20.500.12075/17364